Education and Resources

Patient and Family Resources

For patients and families looking for information on donor registries, cord blood banking and donations, clinical trials and access to cell therapies, or general information and support.

Donor Registries

• NMDP/Be the Match: Blood and marrow donor registry; patient education
• World Marrow Donor Association: Accrediting organization of donor registries

Information and Support

• ASTCT Patient Education: A Patient’s Guide to Understanding BMT & Cellular Therapy
• nbmtLINK: Provides information and personalized support services
• BMTInfonet: Provides easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants

Cord Blood Banking and Donation

• Parent's Guide to Cord Blood Foundation: Resource to educate parents about cord blood medical research and cord blood storage options
• Save the Cord Foundation: Promotes awareness of benefits of cord blood based on unbiased and factual information
• Cord Blood Association Information for Expectant Parents: Answers to frequently asked questions by expectant parents regarding cord blood banking

Clinical Trials and Access to Cell Therapies

• ISCT ECGT Committee: Committee on the Ethics of Cell and Gene Therapy
  Key aspects of unproven cellular interventions to promote effective communication strategies for health-care stakeholders, patient associations, and individuals, highlighting the role of rigorous research prior to treatment
• clinicaltrials.gov: Registry and results database of publicly and privately supported clinical studies of human participants conducted around the world
• Patient Advisory for Stem Cell Therapy and Medical Tourism: Resources to assist patients and family members in their decisions related to cellular therapy